This book is based on the international congress ‘Ethical, Legal and Psychosocial Aspects of Transplantation. Global Challenges’ (Rome, Italy, April 2016). The congress was attended by clinicians, ethicists, psychologists, philosophers, lawyers and policy makers in the field of organ transplantation.The chapters address current issues in the field of transplantation ethics, psychology and law.The topics:
The ELPAT platform aims to promote debate and research on ethical, legal and psychosocial aspects of organ transplantation. ELPAT is an official section within the European Society for Organ Transplantation (ESOT).PrefaceIntroductionEmma K. Massey, Frederike Ambagtsheer, Franco Citterio, Willem WeimarThe role of ethics in the early history of transplantationMichael A. BosEthical, Legal and Cultural AspectsSummary of Workshop 2: ‘Common problems and national approaches to death and deceased donation’Thomas Gutmann & Medard HilhorstCommon problems and national approaches to death and deceased donation: the Italian approachMarco Vergano & Francesca BaroncelliOrgan transplantation and assisted dying: where, when, how and why?Deborah Ummel & Mélanie VachonPre-mortem interventions facilitating organ retrieval: the new Swiss legal frameworkMélanie LevyAge and generational relations in organ donation: an emerging field of empirical research and ethical controversyMark Schweda & Sabine WöhlkeRenal transplantation in the Middle East: challenges and opportunitiesAla A. AliPanorama of kidney transplantation in AlgeriaKhadidja Habchi, Ali Benziane, Mohamed Laib, Aldjia Lamri & Messaoud SaidaniLiving DonationInforming the living donor: practical approaches to moral dilemmasLisa BurnappThe impact of volunteers on unspecified living kidney donation in the UKChristopher Burns-Cox, Paul van den Bosch, Paul Gibbs, Jan Shorrock & Bob WigginsLive donor autonomy and professional protectionism; inconsistency in medical aspects of live donor evaluationIan D. DittmerIs it ethical to offer priority points to compatible pairs participating in kidney exchange programs?Marie-Chantal FortinThe ethics of shifting the US framework of living kidney donation from a disincentive to an incentive based modelGiuliano Testa, Steven Hays & Hoylan T. FernandezPsychological AspectsSummary of Workshop 5: ‘Psychosocial evaluation, support and education of living organ candidates’Inês Mega & Emma MasseyThe role of an independent living donor advocate: discussion of implementation options for the European settingRebecca E. HaysPsychosocial profile of potential kidney recipients and their living non-related donorsSusana M. Bayardo, Silvia R. Groppa, Cora Giordani, Cesar Mombelli, Guillermo Rosa Diez & Nora ImperialiQuality of Life comparison between haemodialysis patients and expanded criteria kidney transplantsChalini Lankage, Hannah-May Elmasry, Hannah Maple, Nizam Mamode & Nicos KessarisUsing the Canadian code of ethics for psychologists to determine the acceptability of organ donation following medical assistanceb to dieMarie AchillePediatric Donation and TransplantationSummary of Workshop 4: ‘Pediatric donation and transplantation’Marion Siebelink & Karl-Leo SchweringImpact of living transplantation on family dynamicsKarl-Leo Schwering, Kristof Thys, Laure Rougier, Isabelle AujoulatUnder what conditions should minors be considered as potential hematopoietic stem cell donors: a review of guidance documentsMiha Orazem & Kristof ThysRecent changes in child-organ donation in the UK & what nextJoe BrierleyOrgan TradeSummary of Workshop 6: ‘Understanding the human organ trade?‘Michael A. BosA critical analysis of organ ‘trafficking’ and the prevailing law enforcement responseSeán ColumbIllegal transplants and medical responsibility under the light of law and ethicsAthina KoufouCurrent status of organ harvesting from prisoners in ChinaHuige LiNeo-cannibalism and ISIS: organs and tissue trafficking during times of political conflict and warNancy Scheper-HughesDeceased DonationSummary of Workshop 1: ‘Clinical research in deceased donation: which medical, ethical, legal and societal aspects have to be taken into account?’Rutger Ploeg & Bernadette HaaseDirected deceased donation: beyond the impartial allocation dogmaMedard HilhorstKeeping consent in context: what is consent to deceased donation and from whom do we need it?David ShawInfluence of annual educational meetings with ICU specialists on rates of deceased donationEva Šteina & Janis JushinskisPublic Issues & CommunicationSummary of Workshop 3: ‘Public issues in organ donation and transplantation’David Rodríguez-AriasAn exploration of experiences in campaigns on organ donation in The NetherlandsJeantine M. M. P. J. Reiger-van de WijdevenPartnerships between media and ethics: students peer-to-peer campaigns for organ donationMihaela Frunză & Ariana GugaUndergraduate healthcare students’ knowledge toward organ donation: a survey in an Italian universityLisa Giovannini, Francesco Fontana, Marika Massari & Gianni CappelliShifts in public perceptions of deceased organ donation in Denmark: lessons learned about public acceptabilityKlaus L. HoeyerAnalysis of studies on communication in organ donation and transplantationMarie Lingemann, Danica Avsec, Bernarda Logar Zakrajšek & Thomas BreidenbachFOEDUS Work Package 7 – international approach in communicationThomas Breidenbach, Marie Lingemann, Bernarda Logar Zakrajšek & Danica Avsec
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